Tagged: Valley Fever Center of Excellence
hOly rOadrunner, Batman, it IS valley fever!
I have never been so happy to be diagnosed with something in my life! On Tuesday, April 2nd, 2013 my husband and I went to my appointment with the resident Valley Fever guru, Dr. Galgiani. He is the renowned VF expert in the country, and was my last hope for sanity. It probably was a good thing he didn’t realize how much was riding on this visit.
Dr. John Galgiani was kind, funny, thoughtful and extremely knowledgable. He was interested in hearing my story, asked questions and was genuinely interested in helping me. When he said, “I can’t tell you the number of times I’ve heard the same things from my Valley Fever patients”, I just about burst into tears with relief!
hOly cactus blOssOm, Batman,
I really dO have Valley Fever!
Like I said, I’ve never been so happy to be diagnosed with an untreatable disease in my life! Gone forever are the crazy thoughts and questions I’ve had rolling around in my head for the last 14 months. Gone are the sleepless nights wondering why I can’t do any normal activities or even just talk on the phone. Gone are the worries about what it is that I do have, and whether I will ever get well.
I was relieved when Dr. Galgiani said I fit into one of the classic Valley Fever profiles – a very healthy, active person, with all the VF symptoms (cough, night sweats, headaches and fatigue) and fatigue being the worst lingering symptom. They don’t know why very active people get the long drawn-out version, but he has seen it many times. He confirmed that the medication doesn’t really help in cases like mine, and that here is not one part of my story that doesn’t fit for Valley Fever.
I am extremely relieved and happy to finally have a confirmation of what I have “known” all along. There are so few doctors who really know this disease, so I’m extremely grateful to be a patient of Dr. Galgiani’s. He has dedicated his career to studying, researching and treating Valley Fever in the hardest hit areas in the US. He was clearly excited to be working on it and making a difference for people who are suffering with it. Thank you, Dr. G!!
He said he has no treatment for the disease itself, but gave me a prescription for a months worth of physical therapy to slowly begin reconditioning my body. Love this! He said to let go of all the figuring out and trying things, and just let them set up a plan that fits me and my condition. I feel very supported and heard. I will go back to see him in 6 weeks – he actually wants to know how I am doing. How cool is that?! (The last 3 doctors told me to come back in 6 months or a year.) Again, thank you, Batman!
Dr. Galgiani is so sure I have Valley Fever that he asked if I would be willing to do an interview for one of the local TV stations last Monday. We were having terrible dust storms that day, and Valley Fever is always a topic of concern on those days. I readily agreed to the interview and loved being a part of educating and voicing the realities of the disease. Below is a link to the interview if you want to take a look.
Right now, this is my favorite t-shirt. I know the keep calm sayings are a bit overused, but I love The Beatles and wearing it makes me smile. So, rOck On, dear friends, rOck On!
I would love this on a t-shirt, too! But the truth is, it is Dr. Galgiani who needs this t-shirt. He really IS Batman!
The real life Batman……
I think I could save the world in these shoes! Don’t you?!
Okay, okay, I will stop myself from carrying this too far. It’s just that as a kid I loved Batman and Robin, and all their corny jokes and funny sayings. But most of all I loved them because they were out there battling evil and winning. I, too, want to be a force for good in the world and plan on continuing to fight for the underdog (oh, I loved Underdog, too).
Here is my final thought on Batman for the day. Maybe we are all being called to connect to our own inner super hero. The part of us that wants to speak up and fight for those who can’t fight for themselves. I think it is really trying to encourage us all to be super heroes in our own lives. Maybe there is a Batman, or Batwoman, inside all of us. Claim your inner super hero, and go out and change your special corner of the world for the better today.
Be kind. Love gently. Live large.
Yay for the real life super heroes!
P.S. Here are a couple of very helpful links if you suspect you have Valley Fever and are looking for more information.
Valley Fever Center of Excellence
Tutorial for Primary Care Professionals – select this option on the page displayed for a PDF file that you can print and give to your doctors to receive the best care possible.
“The purpose of art is washing the dust of daily life off our souls.”
– Pablo Picasso